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During a May 19 town hall meeting with NIH staff members, Jay Bhattacharya, the institutes new director, equivocated when asked about funding cuts for research into improving the health of racial and ethnic minorities cuts made under the guise of purging DEI from the government.
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According to a recording of the meeting obtained by KFF Health News, Bhattacharya said the agency remained absolutely committed to advancing the health and well-being of every population, including minority populations, LGBTQ populations, and every population.
Research addressing the health needs of women and minorities is an absolute priority of mine, he said. Were going to keep funding that. But a study considering whether structural racism causes poor health in minority populations is not a scientific hypothesis.
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We need scientific ideas that are actionable, that improve the health and well-being of people, not ideological ideas that dont have any chance of improving the health and well-being of people, he said. That comment angered many staffers, several said in interviews. Many got up and walked out during the speech, while others, watching remotely, scoffed or jeered.
Several current and former NCI scientists questioned Bhattacharyas commitment to young scientists and minorities. Staffing cuts early in the year eliminated many recently hired NCI scientists. At least 172 National Cancer Institute grants, including for research aimed at minimizing health disparities among racial minorities or LGBTQ+ people, were terminated and hadnt been reinstated as of June 16, according to a KFF Health News analysis of HHS documents and a list of grant terminations by outside researchers.
Those populations have higher rates of certain cancer diagnoses and are more likely to be diagnosed later than white or heterosexual people. Black people are also more likely to die of many cancer types than all other racial and ethnic groups.
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Initially, some workers said, they thought the cancer institute might be spared. HHS Secretary Robert F. Kennedy Jr. has called chronic disease cancer is one an existential threat to the country. Cancer research, with multiple NCI-funded breakthroughs in genetics and immunotherapy, has sidestepped the political minefields around other public health issues, like vaccination.
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People who care about cancer might be the biggest lobby in the country, said Paul Goldberg, editor and publisher of The Cancer Letter, which has monitored oncology science and policy since 1973.
Count Mike Etchamendy, 69, of Big Bear Lake, California, as part of that lobby. Since 2013 hes flown to the East Coast scores of times to participate in five clinical trials at the cancer wing of NIHs Clinical Center.
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They call it the House of Hope, Etchamendy said. Between drugs, therapeutic vaccines, and expert treatment for his rare bone cancer, called chordoma, he said, he believes hes gained at least 10 years of life. Hes proud to have served as a lab rat for science and worries about NCIs future.
People come from all over the world to learn there, Etchamendy said. You cut funding there, youre going to cut major research on cancer.
In response to a list of detailed questions from KFF Health News about the cuts and chaos at NCI, HHS spokesperson Andrew Nixon said the reporting amounted to a biased narrative that misrepresents a necessary transformation at the National Cancer Institute. Nixon declined to elaborate but said research into cancer and other health conditions continues to be a high priority for both NIH and HHS.
We are refocusing resources on high-impact, evidence-based research free from ideological bias or institutional complacency. While change can be uncomfortable for those invested in the status quo, it is essential to ensure that NCI delivers on its core mission, he said.
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After years of accelerating progress that has reduced cancer deaths by a third since the 1990s, the institute has terminated funds nationwide for research to fight the disease, expand care, and train new oncologists. We use the word drone attack now regularly, one worker said of grant terminations. It just happens from above.
The assault could well result in a perceptible slowing of progress in the fight against cancer.
Nearly 2 million Americans are diagnosed with malignancies every year. In 2023, cancer killed more than 613,000 people, making it the second leading cause of death after heart disease. But the cancer fight has also made enormous progress. Cancer mortality in the U.S. has fallen by 34% since 1991, according to the American Cancer Society. There are roughly 18 million cancer survivors in the country.
That trend we can very, very closely tie to the enhanced investment in cancer science by the U.S. government, said Karen Knudsen, CEO of the Parker Institute for Cancer Immunotherapy and a globally recognized expert on prostate cancer.
This article is based on interviews with nearly two dozen current and former NCI employees, academic researchers, scientists, and patients. KFF Health News agreed not to name some government workers because they are not authorized to speak to the news media and fear retaliation.
Its horrible. Its a crap show. It really, really is, said an NCI laboratory chief who has worked at the institute for three decades. Hes lost six of the 30 people in his lab this year: four scientists, a secretary, and an administrator.
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